Establishment and development of the National Association of Patient Organizations (NAPO)
Published
| Region | National coverage |
|---|---|
| Title of the Programme | Health |
| Title of the Project | Establishment and development of the National Association of Patient Organizations (NAPO) |
| Number of the Project | ZD-MGS3-016 |
| Project Promoter | Czech AIDS Help Association |
| Project Partner from Donor State | Norwegian Federation of Organisations of Disabled People (Norway) |
| Czech Partner | Women's Breast Cancer Alliance |
| Status | Estimated project duration: 12/2021 – 12/2023 |
| More Information | Target group: People with disabilities Web pages: https://www.aids-pomoc.cz |
| Total Eligible Costs | 159 991 EUR |
| Grant | 159 991 EUR (100 %) |
Summary:
The project aims to establish and develop an umbrella organization of patient organizations - the National Association of Patient Organizations (NAPO). A similar umbrella organization facilitating systemic involvement of patients across diagnostic groups in the formulation of health policies is still missing in the Czech Republic.
The main outputs of the project will be the establishment of NAPO, its headquarters and operation, expansion of the membership base, establishment of the main information and communication platforms (website, social networks), information services for the patient organization (e.g. creation of a national EUPATI reference point) and activities leading to patient organizations’ capacity building.
The preparation for the establishment and development of the umbrella organization is being carried out by 11 patient organizations constituting the NAPO Preparatory Committee, which emerged from consultations with all patient organizations in November 2020. 69 patient organizations have so far expressed their support for the project and their preliminary interest in becoming members of NAPO.