Professionalization and restructuring of PARENT PROJECT
Published
| Region | National coverage |
|---|---|
| Title of the Programme | Health |
| Title of the Project | Professionalization and restructuring of PARENT PROJECT |
| Number of the Project | ZD-MGS3-034 |
| Project Promoter | PARENT PROJECT |
| Project Partner from Donor State | Frambu Foundation (Norway) |
| Czech Partner | N/A |
| Status | Estimated project duration: 1/2022 – 12/2023 |
| More Information | Target group: General public Web pages: https://www.parentproject.cz/
|
| Total Eligible Costs | 157 684 EUR |
| Grant | 157 684 EUR (100 %) |
Summary:
PARENT PROJECT is a Czech patient organization founded in 2001 by parents of children with Duchenne or Becker muscular dystrophy. The organization focuses on advocacy, individualized care, education, raising awareness, international cooperation, cooperation with doctors and neuromuscular centers in the Czech Republic, and also organizing social gatherings for its members.
At the moment, the team consists of active parents of children with neuromuscular disease and of several experts (doctor, psychologist, physiotherapist, occupational therapist, social worker), everyone on the team is irreplaceable and due to the limited personal capacity, the organization can't reach the maximum potential.
The goal of this project is to professionalize the organization and to secure long-term financial sustainability.
The key activities are:
- strengthening staff capacity,
- development of provided services,
- patient advocacy and networking and
- publicity of the project.